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BCCRF Resources American Cancer Society (ACS) www.cancer.org (800) ACS-2345 Breast cancer services include Reach to Recovery, a support program for newly diagnosed breast cancer patients; Look Good, Feel Better, a program designed to help women with their appearance. Information pamphlets are available upon request. Annie Appleseed Project www.annieappleseedproject.org A non profit organization providing information for individuals with cancer and others interested in complementary alternative medicine (CAM) from the patient's perspective. Army of Women www.armyofwomen.org LOVE/AVON Breast cancer will be diagnosed in 240,000 women this year. We need to move the research beyond animal models to study women. Do you know how to access women that are willing to participate in your research? WE DO. One million women ready and willing to partner with you. Together we can understand the causes and prevent breast cancer. Brain Mets www.brainmetsbc.org BRAINMETSBC.ORG offers women with metastatic breast cancer and their families a place to learn about brain and other central nervous system (CNS) metastases from patient, medical and research perspectives. Breastcancer.org www.breastcancer.org A guide to Web sites that includes information on prevention, diagnosis, treatment, clinical trials, research, and coping to help women and their loved ones make sense of complex medical, personal, and practical information about breast cancer. BreastCare www.breastcare.com This website provides good information about diagnosis and treatment of breast cancer, plus common breast problems. Breastlink www.breastlink.com This is a breast cancer treatment website with multiple treatment sites having a goal of delivering optimal breast cancer care. Breast Cancer Care and Research Fund (BCCRF) www.breastcancercare.org 1 (310) 927 7606 A nonprofit organization that provides information and education to make breast cancer patients, their supporters, and the lay public more knowledgeable about breast cancer, treatments, and research. Breast Cancer Network of Strength www.networkofstrength.org (800) 221 2141 (English) | (800) 986 9505 (Spanish) National nonprofit provides information, telephone counseling, educational programs, and support groups for breast cancer survivors and their families. CABCO - California Breast Cancer Organizations www.cabco-org.us Coalition of breast cancer organizations throughout California who work together to eradicate breast cancer through education and advocacy. CBCRP - California Breast Cancer Research Program www.cbcrp.org The program is responsible for administrating funding for breast cancer research in California. Cancer Care, Inc www.cancercare.org (800) 813 4673 | (800) 813 HOPE Provides free professional counseling and referral services. Cancer Legal Resource Center (CLRC) www.disabilityrightslegalcenter.org (213) 736-1455 We protect the civil rights of people with disabilities through litigation under the ADA and other disability rights laws. Cancer Patients Insurance Advocates (CPIA) www.cancerpia.com (310) 791 4890 Helps you to understand and maximize medical, disability, long-term care, and life insurance benefits. Clinical Trials Information www.clinicaltrials.gov Provides regularly updated information about federally and privately supported clinical research in human volunteers: the trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals. Fertile Hope www.fertilehope.org A national, nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Genomic Health www.genomichealth.com (886) ONCO-TYPE | (866) 662 6897 Laboratory that analyses cancer tissue (paraffin embedded) genetics. HER2support www.her2support.org "A non-profit, website devoted to educating breast cancer patients (and their families) about the HER2NEU gene" Kids Konnected www.kidskonnected.org (949) 582 5443 This nonprofit provides education, understanding, and support for children who have a parent with cancer or who have lost a parent to cancer, 24-hour hotline, youth leadership, camps, and social events. Living Beyond Breast Cancer (LLBC) www.lbbc.org (888) 753 5222 This national education and support organization's goal is to improve the patient's quality of life and help her take an active role in her ongoing recovery or management of the disease. Myriad Genetics, Inc. www.myriad.com (800) 469 7423 Provides testing BRCA-1 and BRCA-2 National Breast Cancer Coalition (NBCC) www.stopbreastcancer.org (800) 622 2838 As the largest nonprofit advocacy group, it works to increase federal funding for breast cancer research and improve access to high-quality health care and breast cancer clinical trials for all women. They also teach women to become advocates. National Cancer Institute (NCI) www.cancer.gov (800) 4-CANCER The Cancer Information Service (CIS) of NCI serves as a community resource and provides information about cancer, including access to NCI's treatment database. NCI also organizes the Physician Data Query (PDQ), which provides information on clinical trials. National Lymphedema Network www.lymphnet.org (800) 541 3259 International nonprofit provides education and guidance to lymphedema patients, health care professionals, and the general public. OncoType DX www.genomichealth.com/oncotype/default.aspx Assists in quantitating the risk/benefit of adding systemic therapy to treatment. SHARE www.sharecancersupport.org (212) 719 0364 A self-help organization for women with breast or ovarian cancer that provides survivor-led support programs and hotline services. Single Point of Contact (SPOC) www.SPOConline.com Provides help from Genentech Oncology in getting Genentech products authorized by your insurance company or will provide your oncologist with the drug free of cost if you qualify for their patient assistance program. Young Survival Coalition www.youngsurvival.org Nonprofit international network of young breast cancer survivors and supporters dedicated through action, advocacy, and awareness to the concerns and issues unique to young women and breast cancer. Wellness Community www.wellnesscommunity.org International organization dedicated to providing support, eduction and hope for all people affected by cancer. |
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